This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog "Al" represents the way that Alzheimer's is invading our daily lives.

Friday, July 3, 2015

Living with Bob and "Al"

Sheri had to stop at Target on her way home last night. She asked "Al" if he needed to use the restroom. Bob hesitated for a moment and then "Al" replied " do they charge for that?"
Heavy sigh.

Thursday, July 2, 2015

Living with Bob and "Al"

Bob managed a hardware store in his last career and was always a handyman, which is why "Al" is able to sit and screw nuts on bolts for hours, it is a familiar task a familiar feel. He is not able to do the 36 piece Alzheimer puzzles anymore and when "they" fold clothes "they" will fold and unfold the same piece over and over again, but it is ok "they" feel like "they" are accomplishing something and that is all that matters :)

Wednesday, July 1, 2015

Living with Bob and "Al"

Bob is living in his own little world, where "work"(code for adult day center), choir, his nuts and bolts and his new shoes are all that matters to him. When Sheri asked him how was his day was, "Al" replied "The guys just couldn't do the nuts and bolts like I do, but they like my shoes and everyone was talking about them (the fashionista that he is). The next thing he says is "but I have not heard a thing about when we will have choir." Now mind you, these are broken sentences said in the way that Sheri understands but not fluid thoughts.Then he says nothing else the rest of the evening.
Sheri is glad Bob can not see "Al", he was not one to brag about his skills at all, and he certainly was not into shoe choice. :)

Tuesday, June 30, 2015

Living with Bob and "Al"

Sheri keeps trying to remember that God has a plan for her life, and that He works all things together for good. She hates the loneliness that comes with this disease. Her jealousy of others overtakes her mind and she gets depressed. She try's to see through the pain to the other side, but the ocean feels pretty big sometimes.
Psalm 38:9
O Lord, all my longing is before you; my sighing is not hidden from you.

Monday, June 29, 2015

Living with Bob and "Al"

Right after Sheri took that video from yesterdays posting, when the music stopped "Al"  turned to Sheri and asked  "Do you use shoes?"  Such randomness, and such a deceiving disease.

Saturday, June 27, 2015

Living with Bob and "Al"

Bob and "Al"had another rough night
Moans of pain, mumbled words of life...
Interesting though, Bob has never dreamt
Or talked in his sleep,in 26 years sharing this bed
And now Al's confusion spills out in the night
Sheri prays for a better day, as the morning draws light.

Be strong and take heart, all you who hope in the LORD.
Psalm 1:24

Friday, June 26, 2015

Living with Bob and "Al"

Sheri does not understand how "Al" can have this incredible amount of cognitive impairment, and yet be able to talk and whistle almost simultaneously and without hesitation.  
What a very strange disease.

Thursday, June 25, 2015

Living with Bob and "Al"

Bob has been very proud of his name badge for "work" code for Adult Day Center he has been wearing it for 4 years now.He wants to wear it even when he is not at "work". "Al" picked up the name badge yesterday that was sitting on the living room end table by Bob's chair and said "what is this?"
Subtle changes. Sheri just needs to Pause, Prasie and Pray.


Wednesday, June 24, 2015

Living with Bob and "Al"

Bob and "Al" are sharing space
"Al's" thoughts are showing on Bob's face
Bob's face is covered with hard work done
"Al's "face shows the battle... won.