This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.
Sheri is very touched by the outpouring of prays and support. Unfortunately the roller coaster ride of emotions will continue for a while regarding a placement location as the place she had chosen can not provide a shared male room that would be covered by the Elderly Waiver Program, for which Bob is a part of. The other option being to pay between $500 and $1300 out of pocket over and above Bob's social security. This not feasible. So Sheri will continue to put one foot in front of the other until she can make a new plan. Sheri does not want to take advantage of all your prayer time, and she did mumble and grumble to God a few times yesterday...but she would not quite call it being on speaking terms yet. So please continue to pray as you see fit.
Sheri has a meeting today, about a potential placement location. She feels like she is in a fog ... a dense, heavy, thick fog. Her chest is tight with the thickness of her fear and she cannot breathe.
Somebody please pause, praise and pray because Sheri is angry and not on speaking terms with God at the moment.
The mental process of deciding to place Bob and "Al" has been exhausting. Behaviors have become unmanageable. More importantly Sheri can no longer keep him safe. She was feeling housebound again because "the boys" do not like being out in the cold, but the sundowning started early yesterday and Sheri decided to just bundle them up and put them in the car and go for a drive. Sheri challenged herself to take her camera and see what type of photos she could take from inside the car, since photo opportunity have been few and far between and she is missing her connection with nature and God. She was able to get a few good shots from parking lots so she was feeling a sense of connection to her surroundings again, so much so that when "Al" managed to not only unlock the car door but actually open the car door WHILE SHERI WAS DRIVING she heard God screaming at her loud and clear that was time to place Bob somewhere where "they" can be safe.
Sheri is glad to see it is not her stressful life that causes her to forget to check Bob's pockets for randomness. She received a sweet but somewhat frantic email from the Adult Day Center yesterday . The wonderful person who does Bob's shower, puts his shirt and tee shirt in the dryer so it will be warm for him when when he gets out of the shower. (how incredibly wonderful is that? Talk about the royal treatment) Well, it was shower day and she popped them in the dryer not realizing "Al" had stashed some crayons in his shirt pocket and ... yep melted crayon on his shirts! Too funny! Because Sheri had just done that last week! Sheri was more worried about the Adult Day Centers dryer than Bob's shirts... cause she is still trying to get the wax out of her dryer at home :)
Sheri just loves the staff at Open Circle, they are wonderful. Thank you for all you do.
Bob was wandering around the apartment last evening, in full sun downing mode. "Al" picked up the red mouse to Sheri's computer and began petting it and making the kissey, kissey, sound like he does with the cats. Well it is a mouse:)
Dear sweet man.
Sheri had the opportunity to go to church by herself this Sunday. This is an awkward thing for her after 20 plus years of taking Bob with her, but she did it anyway. She was so very glad she did as the sermon spoke directly to her heart. "New Year, Fresh Start " was the title of the sermon. Reminding her that God promises He is doing a new thing! A friend mentioned to her recently that she should be thankful we have places to care for Bob and "Al" so she won't be so worn out that she can't fulfill all the giving she is meant to do in the big picture of her life. Sheri really never thought of it that way. So in case some of you need a reminder of what God can do a link to sermon provided :) Click here > New Year, Fresh Start
"Al" is very tactile. Sheri has been trying hard to find things "Al" can not break. She really thought she had it this time. It only took a short time for "Al" to twist and chew his way through her "not so brilliant idea." Foiled again. :(