This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.
If Sheri were honest, she would tell you she often envy's the other couples her age she sees walking hand in hand, or leaning in close at restaurants. She knows it is not right, but she is only human. But then again MAYBE they are holding hands to keep the other from wandering off, and MAYBE they are leaning to close to check to see if their "Al" needs to use the restroom (but with a really big smile on their face.) See... Sheri feels better already. Well honestly not quite yet, but she is hoping the power of positive thinking will take over soon. :)
Sometimes the funniest things happen. "Al" was on his way to the bathroom... the long way around through the kitchen. Bob walked back to the living room mumbling something and Sheri said "I am sorry I did not hear what you said." Bob spoke again this time clear as day " do you want to take a picture? There is a frog on the wall." Sheri said "do you mean a fly?" "Al" very nonchalantly repeated "no a frog" as he sat back down in his chair. Sheri chuckled to herself and thought poor man, so confused. Sheri went to see what he talking about, imagine her surprise when she looked at the wall in the kitchen and low and behold there was a frog!"
Now, how a frog got on the kitchen wall I have no idea, but it was unusual enough that even "Al" noticed :)
Well yesterday was the day! Sheri went to the Arboretum for her photography class courtesy of the Kathi Koll Foundation through nomination of The Caregivers Voice. It was 90 plus degrees outside and so humid you could hardly breathe, and even with the threats of tornados, but Sheri put on her big girl pants and what a wonderful experience. The breathtaking humidity was nothing compared to the beauty of this majestic bird! There are three short clips and then the results! ( and yes this is what I look like when I go to take pictures lol! Don't tell any one :)
What a huge blessing! Thank you daughter number one for caring for Bob and "Al"!
Bob was agitated when she picked him up from "work" (code for Adult Day Center) yesterday. "Al" had his thumb in Bob's belt loop stretching out Bob's back in his usual way, and with anger and frustration in his voice, declared "I need to find a different place to work... there is absolutely NO cooperation here."
A oh time for a new plan. Which is don't mention work again tonight and "Al" will forget by morning See always a bright side. :)
Sometimes something very unexpected happens. Sometimes there are strangers that bless others in ways so unexpected that it makes it hard to swallow. Such is the way Sheri was blessed by a complete stranger. Please click this link to The Caregivers Voice website and read the article, to see how the wonderful Kathi Koll Foundation blessed Sheri in the most unexpected way. A big thank you as well to Brenda Avadian for passing along my name to the foundation.
Sheri is blessed beyond words, and has a huge lump in her throat. God is good.
Do you know a caregiver in need?
A couple of weeks ago, Sheri got to meet a friend she only knows through her blog. What an amazing thing the internet can be. It was so good for Sheri to meet someone walking the same path, someone she did not need to fear speaking the truth with. It is so hard to believe there are so many people traveling this road. It did help Sheri to remember she is not alone. Thank you Linda, for taking the time to have lunch with me, and sharing your journey :) Galatians 6:2Bear one another’s burdens, and so fulfill the law of Christ.
Daughter Number One (the one who wears her heart on her sleeve) was so very helpful this weekend and took Bob and "Al" for several hours so Sheri could recharge. Sheri has come to realize that she uses work as an escape from her reality, and when work is in turmoil, her mind has no resting place so dealing with "Al" is much more difficult. Thank you Daughter Number One you are a blessing indeed.
Matthew 11:28-29“…Come to me, all who labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy, and my burden is light.”