This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Sunday, July 24, 2016

Living with Bob and "Al"

Bob asked Sheri "where everyone was" yesterday. Out of pure curiosity, and not really expecting an answer,  Sheri replied "who is everybody"? "Al" replied all the people that sit in the room." Sheri finally realized "Al" thought he was at "work" (code for Adult Day Center) as Sheri unloaded Bob's nuts and bolt from "Al's" shorts pockets, because "Al" said " he was going to take those out.. when he got home." :(

Saturday, July 23, 2016

Living with Bob and "Al"

Sheri is glad it is the weekend. Work has been more than a tiny bit stressful. Now if she can just convince "Al" that the weekend is for relaxation... cause Sheri just doesn't have a "plan".

Friday, July 22, 2016

Living with Bob and "Al"

"Al" is doing a new marching/shuffle step kinda thing. Bob must be remembering his high school band days, but ... with his cane instead of his tuba :)

Thursday, July 21, 2016

Living with Bob and "Al"

Dear Bob, Please ask "Al" if he knows any other song he can whistle in his sleep.  Sheri loves "To God be the Glory" but Sheri always feels like she needs to stand up and praise God, but honestly, she does not sleep well that way. :)

Wednesday, July 20, 2016

Living with Bob and "Al"

This disease is wretched
it stops life from moving on
We go through the motions
We have to carry on

"They" don't know what's happening
Bob and Al don't see a thing
Our hearts are breaking daily
All the pain these motions bring

Yet we know we must push forward
and find joy in it, where we can
The Lord promises his faithfulness
Not that we'll like the plan.


Psalm 36:5
Your love, O LORD, reaches to the heavens, your faithfulness to the skies.

Tuesday, July 19, 2016

Living with Bob and "Al"

Sheri tries hard to give others a glimpse of why Alzheimer's is so much more than memory loss. The things she can't show, are things like trying to explain that the music making from yesterdays video, happens all day long, and if it is not with his nuts and bolts it is with anything in his hands. Of course she is grateful Bob still has enough coordination to do that, she has had to be a bit creative herself and has found that her headphones and some hymns playing through her phone help drown out the constant banging of "Al"s music. :)
Simple pleasures.

Monday, July 18, 2016

Living with Bob and "Al"

"Al" can make music out of anything, today Sheri will try counting her blessings instead of her woes :)
video


Sunday, July 17, 2016

Living with Bob and "Al"

Bob the handyman and "Al" the fashionista that he is, worked together to come up with a handy fashionable place to carry Bob's cane... pants have multiple uses, when you need to wave down the "choir bus" driver :)


Saturday, July 16, 2016

Living with Bob and "Al"

Sheri feels, sometimes....
Like she is drowning , like she can't breathe
She is a participant in a race she can't win

Her waves of pain are too deep
The water is rushing in
She can't look forward
She can't look back

The only way to look ......is up.

Chronicles 16:11

“Look to the LORD and his strength; seek his face always.”

Friday, July 15, 2016

Living with Bob and "Al"

Sheri tries hard to find a balance of living in the moment and planing for the future. It is a very difficult task. She often thinks about the expected "boom" of people affected by this disease. The world is nowhere near ready. It will take a specialized army of professionals willing to challenge the current methods of care and finding affordable options for care for these individuals. Sheri knows there are a lot of good things happening in this arena, but she is sure like for herself, the task is overwhelming. Sheri knows there are no easy answers she is just speaking her fears out loud.
Sheri needs to pause, praise and pray.