This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.
Saturday, October 22, 2016
Sheri is trying to remember to balance the joy and pain in her life right now. Today she gets to enjoy a bridal shower for daughter number one, hosted by the grooms twin sister. Sheri will be able to rest easy as a dear friend will take on the "boys". God is good.
Friday, October 21, 2016
"Al" is frustrated that Bob put the nuts on the bolts so tight that even with a pair of pliers he could not loosen them. Bob recommended to "Al" to use a second set of pliers (one to get a grip on the bolt and one to turn the nut) and Sheri hesitantly complied. What happens when you give the "boys" each their own set of pliers... a fight to the death :)
Thursday, October 20, 2016
The new medicine is helping with agitation but not with sleep. Bob's legs appear ro have turned to rubber and "Al" wants to knock on doors, open windows and see if Santa is here... long night :(
Wednesday, October 19, 2016
Sheri has been keeping all the plates spinning and all the balls in the air for a very long time. But one of the balls (her transportation for the boys) fell, landing on one of the spinning plates and Sheri is afraid she is losing her race against time.
Sheri needs pause , praise and pray.
Sheri needs pause , praise and pray.
Tuesday, October 18, 2016
Sheri thinks this return ride home on the bus is not going to work out. Bob's scheduled pick up time from "work" (code for Adult Day Center) was 4:10 pm. "Al" did not arrive home until 10 minutes until six... and it wasn't pretty. :(
Monday, October 17, 2016
Sheri is so very thankful for Daughter Number 2, she left her husband behind and came back to Minnesota early to help with the move and the transition of Daughter Number 1 getting married. She spent time with her Dad and "Al" yesterday so that Sheri could take an hour or so to have some much needed camera time. Sheri can't really explain it, but when she is out doing photography, she has only what she sees through the lens to focus on and it allows her to just breathe. God is good.
Sunday, October 16, 2016
Wow one whole night without "the boys" waking up that is a blessing. Now if she can retrain herself not to wake up to see if "they" are up or still breathing :)
Saturday, October 15, 2016
A meds addition was necessary for Bob and "Al" and Sheri is cautiously optimistic. Sheri wants to share with you a great comforting devise she has found. At the suggestion of Daughter Number One she looked on line and found this wonderful pet from Hasbro Lifelike Cat. Sheri bought this primarily to see if it would help at "work" (code for Adult Day Center). "Al's" agitation has escalated there quite a bit. The Day care reported that it definitely calms him, so knowing that the doctor trips can cause "Al" great anxiety she brought it with her. Sheri shot this video in the doctors office yesterday. Please watch till the end it is not very long , although pricy it is very much worth the money. It actually meows as well but Sheri had the mute function on. "Al" definitely believes it is one of our cats :)
Friday, October 14, 2016
Thursday, October 13, 2016
Well a trip to the doctor is in order for "the boys" tomorrow. Something has changed, not unexpected of course but seems to be a significant change. Sheri timed Bob's movements last night and "Al" had some type of jerky reflex type movement every 5 to 10 seconds for over an hour . Then she stopped counting and moved to the love seat to try to get some sleep. :(