This blog is about life with my husband who was diagnosed with Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog "Al" represents the way that Alzheimer's is invading our daily lives.
Bob has been calling Daughter Number One ( the one the wears her heart on her sleeve) the name of one of his sisters lately. Sheri has not corrected him, she knows it will do no good. But her heart sinks a little each time "Al" says it.
Sheri tried something different and paid a little more to take "Al" to "work" on a Saturday, in order to try to make heads or tales of things needing to be done to move from this tiny house she rented. She learned that Bob's confusion and disorientation is worse then she thought. The structure is a little different there on Saturday and with fewer people. She thought that since he goes there 5 days a week full time it should be fine, however when Sheri picked him up she asked him how his day was, his response was unexpected to say the least. "Al" said that she had not taken him to the same place and he did not know if she was coming back to get him. Sheri said well of course she was coming to get him. "Al" said again it was not the right place but he did see Sheri's pictures there ( Sheri had donated some flower pictures for their walls) and he was not sure how they got there. Bob was in total confusion by just that little change, and of course she heard the story 5 or 6 times on the way home. Well at least she knows he was safe during that time. :(
Coming home from work yesterday, Bob noticed all the political signs out in all the yards. One in particular caught his eye. The sign said LOON for State Representative. ( Which is really the persons name) "Al" with confusion in his voice said "well, some one sure did not think that through."
The Minnesota state bird is the Loon :)
Bob went fishing yesterday on an outing with "work" (code for Adult Day Center). They sent her this picture. When Sheri picked Bob up she asked him if he enjoyed the outing. "Al" said he had not been on an outing and in fact they did not even have choir. :)
Well, Bob never did like fish anyway.
Sheri sees change in the wind again. This time more with herself, then the constant change with Bob and "Al". Daughter number 2 (the one that shields her heart with her sleeve) will be leaving soon for California, to prepare for the return home of her very new husband. from deployment. She is so happy for her to start her new life, but Sheri will miss her greatly.
Then when Sheri got home from work yesterday, there was a card in the door from the county Land Acquisitions office, stating that she needed to contact them right away because this tiny house Sheri rented ( when they lost theirs to what Sheri calls Alzheimer Foreclosure) is affected by a major expansion project. Eek. Change so hard for Bob... and Sheri .
Sheri thinks she needs to pause, praise and pray.
Sheri gets so frustrated when she tries so hard to keep Bob active and engaged in activities all day, and then when they finally sit down, relax and get ready for bed "Al" will say "So, what is the plan for today?" Sheri just needs to not try so hard. :)
Well Sheri should have learned by now not to walk out of the bedroom while helping Bob get dressed. He complained all day yesterday about being hot, probably because "Al" had three shirts, and his pajama bottoms on under his jeans, which Sheri did not see... till bed time. :)
Sheri had to stay a little later at work yesterday, which meant she would be late to the day care. She asked Daughter Number One ( the one who wears her heart on her sleeve) to pick up Bob for her. She said sure. Then she text Sheri and said "Mom I am going to kidnap Dad for a while so after work grab your camera and go take some pictures!" What a delightful, and needed surprise!
Just a couple of hours away from "Al" totally alone helped Sheri so much. Daughter Number One is turning 24 this year, Sheri is so very proud of her. Sheri found a little peace among the chaos of her life.